Rett syndrome is a rare neurological disorder that mostly affects girls and begins after a period of typical early development. Babies usually grow and learn normally for the first several months, then gradually lose skills they had gained, such as purposeful hand use, speech, or coordinated movement. Many children develop repetitive hand motions, trouble walking, slowed growth, and challenges with communication. Rett syndrome is caused by a genetic change that affects how the brain develops, but it isn’t usually inherited. While there is no cure, treatments like therapy, medications for specific symptoms, and supportive care can help children stay as healthy and comfortable as possible. With ongoing care, many individuals with Rett syndrome live into adulthood.
Physical therapy and speech‑language therapy play an important role in helping individuals with Rett syndrome stay as active, comfortable, and connected as possible.
Physical therapy focuses on keeping the body moving—helping maintain mobility, improve balance, and support walking skills for those who can walk. Therapists also work on flexibility and posture, which can reduce discomfort and help slow the progression of issues like muscle tightness or scoliosis. These sessions often include gentle strengthening, stretching, and guided movement to help children use their bodies in the safest and most effective ways.
Speech‑language therapy supports communication, even when spoken words are limited or lost. A speech‑language pathologist helps children learn alternative ways to express themselves, such as eye‑gaze systems, picture‑based tools, or other assistive communication devices. Therapy also supports social interaction skills and can help with feeding and swallowing challenges, which are common in Rett syndrome. Together, these therapies give children more ways to participate in daily life and help families better understand and respond to their child’s needs.
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